To celebrate powerful collaborations in the Rare Diseases Clinical Research Network (RDCRN), we worked with patient advocacy groups to share stories of patient involvement in RDCRN research.

Felipe Polo-Wood is an innovator—both in his work as an IT consultant and as a patient with myasthenia gravis (MG), a chronic autoimmune neuromuscular disease characterized by weakness of the skeletal muscles. Here, Felipe shares his journey with MG, from fighting for a diagnosis to making a difference through research participation.