Resources for Patients and Families h1 >
Receiving the diagnosis of myasthenia gravis can cause a great deal of stress. Here are helpful resources to help you or your loved ones understand more about the disease, to help manage and improve overall health.
What is Myasthenia Gravis?
This video provides an overview of myasthenia gravis. It was supported by a grant received by Dr. Richard Nowak from the National Institutes of Health in collaboration with Myasthenia Gravis Rare Disease Network (MGNet).
There is no way to prevent myasthenia gravis, however, MG patients can do many things to help maximize their health and reduce exacerbation of symptoms.
MG and Exercise
The hallmark of MG is muscle weakness, which makes it a lot more challenging for patients to live an active lifestyle. Physical exercise is crucial to maintain a healthy weight, however, it is essential to be aware of the kinds of exercise to engage in. This video produced by Conquer MG highlights physical activities that MG patients can incorporate in their lives once their illness is stable.
Managing stress is not only essential to prevent diseases but it also leads to tremendous health benefits. This video developed by Conquer MG highlights seven helpful tips that MG patients can incorporate to cope with stress.
An Opportunity to Advance Medicine
A clinical trial is carefully designed research that tests the safety and effectiveness of treatments such as drugs, medical devices or behavioral interventions. Patients who participate in clinical trials are afforded access to promising treatment and free and expert medical care.
Myasthenia Gravis Foundation of America
The Myasthenia Gravis Foundation of America (MGFA) is committed to finding a cure for myasthenia gravis and closely related disorders.
Conquer Myasthenia Gravis (Conquer MG)
Conquer Myasthenia Gravis is driven by the desire to help MG patients get prompt diagnosis and optimal care. They work to improve MG patient lives through programs of patient services, public awareness, medical research funding, professional education, advocacy, and patient care.
Myasthenia Gravis Association (MGA)
The Myasthenia Gravis Association is dedicated to supporting patients, families, friends, and communities impacted by myasthenia gravis. They work to build a supportive community for those affected by myasthenia gravis by increasing public awareness, providing educational opportunities, and fostering meaningful connections.
Myasthenia Gravis Foundation of California
The Myasthenia Gravis Foundation of California (MGFC) provides funds to advance the most promising research into the cause and cure of myasthenia gravis at prestigious universities and medical centers. The foundation focuses on public and professional education through information and referral services, seminars for health care providers, and media coverage.
Myasthenia Gravis Minnesota
Myasthenia Gravis Minnesota strives to support individuals with myasthenia gravis (MG) and other myasthenic syndromes, and their families, through information, education and outreach.
MG Social Media Support Groups h2 >
Online MG support groups are available for patients and families to share their stories and experiences. Please keep in mind that these social platforms are not a substitute for medical advice and guidance. Talk to your general medical doctor or neurologist if you have questions.